Number of Guests: 283
Entries (1) to (283)...
Visitor: Lisa Harell Reference: Mikes page Location: Georgia WebSite: eye cancer Web Info: Contact: theharrells1@bellsouth.net Date: Sat, Jun 24, 2006 at 00:50:41 (EDT)
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Comments: My brother is a 42 year old white male with blue eyes. He is incarcerated and exam showed he has melanoma cancer of the eye. I cant get no answers from anyone what kind..Im scared and need to find resources before they will release him. No Insurance.. Can someone please lead me in the right direction. Nice website here. thank you Lisa |
Visitor: tina Reference: cancer eye friend Location: pa WebSite: Web Info: Contact: gardenfairy1960@msn.com Date: Mon, May 22, 2006 at 21:54:59 (EDT)
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Comments: No comment at this time..... |
Visitor: Marjorie Reference: surfing the web Location: australia WebSite: Web Info: Contact: Date: Sat, May 20, 2006 at 11:25:44 (EDT)
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Comments: No comment at this time..... |
Visitor: Karen Smith Reference: searching net Location: AZ WebSite: Web Info: Contact: countrystoreoldcountrystore@yahoo.com Date: Mon, May 15, 2006 at 12:09:27 (EDT)
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Comments: I have Clarks Stage V and I am scheduled foe surgery on Jun 1 st if I can find the funds. I have no insurance and don't know what to do. The hospital will not do anything without the money up front. Been on the net for aweek looking. Nothing yet. Thanks Karen Smith |
Visitor: Jess Reference: Late-night internet surfing Location: Michigan WebSite: Web Info: Contact: Date: Wed, May 03, 2006 at 23:29:45 (EDT)
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Comments: I have been reading this guestbook, and the stories of young deaths are freaking me out. They should be. Two years ago, I had a small (pencil eraser), flat, hairless, depigmented lesion with an irregular pinkish border and a doughy consistency at the center. I saw my doc, she gave me a fungal cream. I put it on, it didn't help, I eventually stopped paying attention to the lesion, which was easy to do because it is located in my lower pelvic region and covered by the pubic hair around it. This was a mistake. Seven months ago, I gave birth to a beautiful baby boy via C-section. I noticed that the scar did not form in the area that i used to have the weird lesion. The depigmented, hairless doughy area was now about the size of a penny. My c-section scar is red and raised everywhere except in the 1-2 cm region of the lesion, where it looks like the skin was not even cut. The lesion is now about the size of a nickel, with very irregular borders, and feels like a deep trough when palpated. It has never hurt, itched, scaled, bled, etc. I don't think it was ever a fungal infection. I have an appointment with a dermatologist on Tuesday. My PCP had no idea what it was. I told him I think it is an amelanotic melanoma. I am a doctor. I just graduated from medical school before I gave birth to my son. When I became pregnant, I decided to spend my son's first two years at home, and start residency late. I was glad I stayed home before, but I'm really glad now. I love my son. He loves me too, with his all of his one-tooth-grin soul, I'm sure :) I hope it is some weird fungal infection that I never learned about in medical school. I'd rather walk out of my appointment feeling incompetent than feeling mortal. Wow. It's hard to tell yourself you're getting all worked up over nothing, when you know you're not. |
Visitor: Theresa Reference: Location: New Jersey WebSite: Web Info: Contact: fctheresa@yahoo.com Date: Tuesday, May 02, 2006 at 11:58:21 (EDT)
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Comments: I Have Malignant Melanoma Looking to chat with others, who have the same I am undergoing IL2 treatments |
Visitor: Theresa Reference: Location: New Jersey WebSite: Web Info: Contact: fctheresa@yahoo.com Date: Tuesday, May 02, 2006 at 11:56:23 (EDT)
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Comments: No comment at this time..... |
Visitor: Alena Reference: Alena Location: Spain WebSite: http://www.dirsys.info/aztec-tattoos Web Info: http://www.dirsys.info/aztec-tattoos Contact: alena80@mail.com Date: Mon, Apr 17, 2006 at 17:18:52 (EDT)
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Comments: you have very nice guestbook and website |
Visitor: Lori Fields Reference: Ask.com Location: Indiana WebSite: Web Info: Contact: Date: Thurs, Mar 30, 2006 at 16:33:31 (EST)
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Comments: My husband was diagnozed with Malignant Melanoma in Jan. He is having trouble taking the Immunotherapy Infuron. They had stopped it 2 times because his white blood cell has been down. Is there any other options? |
Visitor: Bev Reference: from eye-melanoma.com/forum Location: PA, USA WebSite: Web Info: Contact: Date: Sat, Mar 25, 2006 at 17:16:21 (EST)
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Comments: I have a Choroidal melanoma, diagnosed Jan 2004, treated Wills, OK for now. I am always looking for more info and people to talk to. I am a medical assistant, work part time, am 54 yr old female, white, blue eyes. I have a pet house bunny. I'll add more after I look at the site! Bev |
Visitor: Yvonne Gibb Reference: From lost.eye Location: UK WebSite: Web Info: Contact: yjgibb@qinetiq.com Date: Thurs, Mar 23, 2006 at 06:58:53 (EST)
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Comments: No comment at this time..... |
Visitor: Kim Reference: google search Location: CA WebSite: none Web Info: Contact: kjminhb@aol.com Date: Sat, Mar 18, 2006 at 19:31:29 (EST)
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Comments: Thank you for organizing this website to share with the world. I'm sure you have helped save the lives of many people. |
Visitor: Beth Chadwick Reference: Location: Huntersville NC WebSite: Web Info: Contact: bac0819@aol.com Date: Mon, Feb 27, 2006 at 13:20:55 (EST)
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Comments: My 5 year old daughter was recently diagnosed with malignant metastatic melanoma (2 positive lypmh nodes on sentinel lymph node disection) After surgery to remove remaining axillary lymph nodes the oncologist has recommended interferon therapy. Anyone with experience with interferon ? Am concerned with possible long term effects........one being possible infertility. can you tell after/during treatment if you have been affected ? |
Visitor: marsha orr Reference: google Location: georgia WebSite: google Web Info: Contact: mgorr@adelphia.net Date: Mon, Feb 27, 2006 at 05:14:15 (EST)
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Comments: First time visitor. Usually use mpip.org melanoma site. It has been down for a couple of days and was trying to find someone who may know what has happened. Hopefully, it is just doing some updating for the site or something similar. |
Visitor: Gail Wilson Reference: Linked from a cancer info page. Location: The Dalles, Oregon WebSite: Web Info: Contact: sweetheart_1@charter.net Date: Fri, Feb 17, 2006 at 17:56:09 (EST)
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Comments: Please, help! My s/o of 18 years has just been diagnosed with nodular melanoma that has spread to his lungs,liver and lymph nodes. The doctors are moving very, very slow and his disease is moving very, very fast. Please e-mail advice on how to proceed and personal experiences on fighting this if possible. Thanks to all and God Bless. |
Visitor: Mike Utley Reference: Location: Tennessee WebSite: Web Info: Contact: mlutley@hotmail.com Date: Mon, Feb 13, 2006 at 17:52:50 (EST)
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Comments: Diagnosed with ocular melanoma in the left eye on Jan. 11 2006. The mole was found in 1997 and under annual surveillance since that time. In Oct. 05 a change was noticed and I was sent to Dr. Sternberg at the Vanderbilt Eye Center in Nashville, TN. The tumor was 12mm x 8mm x 4mm in height. A radiation plaque was placed on the eye Jan 31 and removed on Feb. 7. I still have some discomfort in the eye and feel fatigued. My first follow-up appointment with Dr. Sternberg is Feb. 27. |
Visitor: mom Reference: Location: WebSite: Web Info: Contact: Date: Fri, Feb 10, 2006 at 01:07:16 (EST)
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Comments: No comment at this time..... |
Visitor: Kelli Reddick Reference: Top Melanoma Hospitals in US Location: Nashville WebSite: Web Info: Contact: kreddick@bellsouth.net Date: Thurs, Feb 09, 2006 at 22:55:10 (EST)
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Comments: My Dad was recently diagnosed with a Clark Level IV Melanoma. We traveled from Nashville to Houston to see Dr. Sewa Legha in Houston. He will be having surgery next week at MD Anderson. Would love more detailed info. Thanks. Kelli |
Visitor: Kelli Reddick Reference: Top Melanoma Hospitals in US Location: Nashville WebSite: Web Info: Contact: kreddick@bellsouth.net Date: Thurs, Feb 09, 2006 at 22:54:59 (EST)
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Comments: My Dad was recently diagnosed with a Clark Level IV Melanoma. We traveled from Nashville to Houston to see Dr. Sewa Legha in Houston. He will be having surgery next week at MD Anderson. Would love more detailed info. Thanks. Kelli |
Visitor: Helen Kramer Reference: google Location: NY WebSite: Web Info: Contact: realsol1@aol.com Date: Sun, Feb 05, 2006 at 10:11:31 (EST)
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Comments: I would like to know what protein foods are low in Tyrosine |
Visitor: Judy Fairchild Reference: OCU-MEL website Location: Texas WebSite: Web Info: Contact: judyfairchild@charter.net Date: Sat, Feb 04, 2006 at 00:07:35 (EST)
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Comments: My 32-year-old stepson had choroidal melanoma 11 years ago. Last Mar, it showed up in his liver. He has been doing chemo-embolizations for 10 months but can't do them any longer because of toxicity. We are waiting to learn about another treatment his doctor recommended. I joined the OCU-MEL group a few days ago, and it has already been so very helpful. My heart goes out to all who are battling this disease and to their families. |
Visitor: Marge Kletzel Reference: Internet Location: Orange County,, CA WebSite: Web Info: Contact: novabsn72@aol.com Date: Thurs, Feb 02, 2006 at 19:35:05 (EST)
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Comments: My husband Joe was diagnosed in Oct. 2003. A mole was removed from his shoulder with a positive SLN. Subsequently he had mets to his brain and bowel which were surgically removed. This was followed by radiation,and gamma knife to his brain and chemo. Lastly when a lymph node in his neck and a tumor in his abdomen appeared he was treated experimentally with an injection of IL 2 directly into the lymph node on his neck.. The subsequent scans show marked improvement so we live now scan to scan as I'm sure a lot of you out there do also Best wishes to all. |
Visitor: Joe Burtone Reference: Internet Search Location: New Jersy WebSite: Web Info: Contact: joeburtone@yahoo.com Date: Tuesday, Jan 17, 2006 at 08:24:59 (EST)
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Comments: My 39 year old wife was diagnosed with Stage III metastatic malignant melanoma in Oct 2005....primary site of melanoma is unknown....Radical neck dissection performed at memorial sloan kettering (10/21/05)..23 lymph nodes removed..2 cancerous lymph nodes...21 benign....no sign of disease anywhere else at this time...however, swelling in the right clavicle region near the surgery site...doctor wants Dawn to have Ct scan of chest...possible lymphdema or spread of disease...she started interferon and completed the 20 high dose treatments and is scheduled to begin 3x per week for the next 48 weeks....anyone have any experience with lymphdema? and can you share your thoughts....any help is greatly appreciated. |
Visitor: ter Reference: google Location: syracuse WebSite: Web Info: Contact: Date: Mon, Jan 16, 2006 at 09:52:03 (EST)
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Comments: No comment at this time..... |
Visitor: Sheena Krause Reference: search Location: Colorado WebSite: Web Info: Contact: hottod7675@aol.com Date: Mon, Jan 02, 2006 at 22:56:07 (EST)
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Comments: My Dad passed away with malignant metastatic melanoma in Aug of 2005. It was a quick death. Unfortunatly it was the best. The last few months of my Dads life were miserable to watch. Growing up he worked 50-70 hours a week. Always out in the garage working. Then in Jun of 2005 he was diagnosed. It went downhill and quick after that. My Daughter and I went to Tennessee on Jul 4th to go to the Dr's with him he decieded not to do chemo. We came back to Denver on the 6th it wasnt even a week later he flew back here to be with the family he loooked like he had aged from 50 to 90 in a week. He stayed with me for a month until I was forced to put him in hospice I couldnt do it anymore and he couldnt walk, talk or eat. Four days laster he passed. I WISH THIS CANCER WAS MORE ADVERTISED. Its very scary and hard to watch someone go thru this. Thanks for the great site. |
Visitor: Mike McNinch Reference: Location: WebSite: Web Info: Contact: mike.mcninch@cox.net Date: Mon, Jan 02, 2006 at 20:49:14 (EST)
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Comments: Pete, e-mail me - my last msg to you bounced. |
Visitor: Paul Dillon Reference: Proleukin Web Page Location: New York WebSite: Web Info: Contact: paul.dillon.b@Bayer.com Date: Fri, Dec 02, 2005 at 11:57:07 (EST)
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Comments: My daughter was just diagnosed with melanoma. |
Visitor: Theresa H Reference: surfing for info Location: Florida WebSite: Web Info: Contact: woodyhoward@earthlink.net Date: Tuesday, Nov 29, 2005 at 14:49:34 (EST)
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Comments: Just trying to understand. A friend of mine lost his father to melanoma about 2 years ago. He had a lump removed from his neck followed by radiation a few months ago. Now he has a larger lump in the same area that he refuses to have biopsied. He is in the hospital receiving pain medication and plans to let it take his life. It seems unreal to me as he is in his forties and has a wife and young child. His sister explained that despite all that was done for their father he died anyway so she understands why he doesn't want treatment. If anyone can help me understand this your reply would be appreciated. |
Visitor: Christine Sutton Reference: researching melanoma Location: Florida WebSite: Web Info: Contact: csutton1959@cox.net Date: Thurs, Nov 24, 2005 at 13:55:30 (EST)
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Comments: My son Jeremy was diagnosed with melanoma Sep 15th after having a seizure on the 14th. I don't think there was a stage for his. He had mets everywhere. He passed away yesterday morning at 2:20am with many family members by his side. He was 28. We believe he knew he had melanoma a self diagnoses, but also knew it was too bad. He had radiation to the brain and the spine. Two rounds of chemo, Temador. I never believed he had a chance. He is my oldest son of four sons, and he left a young wife. This is a horrible disease. His started with a mole on his back, and he told me once you just don't believe your going to die that young. He was a college student and had no health insurance...He was a wonderful son... |
Visitor: Bill Kingsbury Reference: Cancer Support Group recommendation Location: Houston, Texas WebSite: Web Info: Contact: bkings@swbell.net Date: Thurs, Nov 10, 2005 at 18:46:49 (EST)
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Comments: I am a Stage III metastatic Melanoma patient who also has Crohn's disease. Original Clark's 3 mole on back in 1998 with right axillary lymph node disection in 2003. Treated at MD Anderson, but Crohn's disease makes traditional therapies too risky. Heard about this site through the Men's Cancer Support Group in Houston and hope to learn more about potential treatments and connect with others that have cnacer along with another auto immune disease. |
Visitor: Kim Pruden Reference: I subscribed to Mel-l a few years ago Location: New York WebSite: Web Info: Contact: finch56@yahoo.com Date: Tuesday, Nov 08, 2005 at 15:52:23 (EST)
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Comments: We lost our beautiful son to the beast on 10-28-05. He was originally diagnosed in 4-00 when a mole was taken off his back. He had wide excision & SNL biopsy with microscopic cancer cells in Sentinal node but in none other. He did 3 mos of Interferon & continued with scans and bloodwork every 6 mos. On 9-4-05 a cat scan showed 3 tumors in his lungs and a large mass in his adrenal gland. We took him to Univ of Pittsburgh to get him the best treatment and they started chemo & radiation. He suffered a great deal with the pain and chemo made him very ill but he kept fighting. They then found a large tumor in his pelvic bone that also caused him horrible pain. This disease spread so fast but I'm grateful for that. His pain is over now and he didn't have to suffer for months. If anyone would like to email me, please do. I pray they find more help for this disease. My heart is with all of you that suffer but please go to large hospitals that specialize in this disease immediately! It can make a difference. |
Visitor: raine Reference: search Location: arizona WebSite: moonmaidenmedicine Web Info: Health in a Heartbeat Contact: moonmaid@moonmaidenmedicine.com Date: Sun, Oct 23, 2005 at 17:24:06 (EDT)
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Comments: There are ways to improve the odds against cancer |
Visitor: Joyce Whaley Reference: Skin Cancer Resources Directory Location: Clovis, CA WebSite: Web Info: Contact: dwhaley@sbcglobal.net Date: Tuesday, Oct 11, 2005 at 13:37:32 (EDT)
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Comments: I was diagnosed with melanoma .34mm on my right arm last week. I will be going in next week for more invasive removal. Just doing research at this point. |
Visitor: Rebecca Reference: SEARCHING Location: ILLINOIS WebSite: Web Info: Contact: dbarnard@shawneelink.net Date: Tuesday, Sep 20, 2005 at 21:50:51 (EDT)
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Comments: My husband was diagnosed with MM two years ago primary site on his neck. skin colored mole came up on his neck. Two months passed from the initial appearance of the mole untill it was removed stage IIB ulcerated. one year later metas. to the lung,4 nodules he has been on chemo for 4 months, after 2 months of chemo two of the nodules shrunk 50% After 2 more months all 4 nodules grew. we are very disappointed but have not lost our FAITH in GOD. |
Visitor: Rebecca Reference: Location: Illinois WebSite: Web Info: Contact: Date: Tuesday, Sep 20, 2005 at 21:34:18 (EDT)
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Comments: No comment at this time..... |
Visitor: Michael RICE Reference: Google Location: Carlsbad California WebSite: Web Info: Contact: mike.rice@goldenstatefence.com Date: Sat, Jul 09, 2005 at 16:36:21 (EDT)
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Comments: I have just been diagnosed with Type IIIC Melanoma, (multiple nodes + ulcerated primary), and go under the knife on Thurs the 21st of Jun, looking for a little help here emotionally. Thanks. |
Visitor: ali kerr Reference: looking on google Location: england WebSite: Web Info: Contact: alisonkerr4@aol.co.uk Date: Sat, Jun 04, 2005 at 17:57:55 (EDT)
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Comments: i need help - my husband died of melanoma march 8th this year. the doctors told us that the mole on his arm was a secondary tumour not the primary site - is this right? i desperately need help finding this out. Paul died with multiple tumours all over his body. |
Visitor: pascal Reference: surfing Location: md WebSite: Web Info: Contact: Date: Tuesday, May 17, 2005 at 18:44:25 (EDT)
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Comments: No comment at this time..... |
Visitor: ALICE ECKLEY Reference: RESEARCH Location: PENNSYLVANIA WebSite: Web Info: Contact: ammeckley@peoplepc.com Date: Fri, May 06, 2005 at 11:23:17 (EDT)
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Comments: MY OLDER DAUGHTER WAS DIAGNOSED WITH MELANOMA SEVERAL YEARS AGO AND SINCE HAS HAD SURGERY AND SEVERAL BIOPSIES. SHE IS ONLY 30 AND IS UNDER NO TREATMENT. SHE DOES HOWEVER KEEP AN ON EYE ON HER SKIN. I AM VERY CONCERNED AND HAVE WONDERED WHAT KIND OF FUTURE SHE WILL HAVE. |
Visitor: debra jones Reference: web site Location: sacramento WebSite: Web Info: Contact: debrajones9@msn.com Date: Tuesday, May 03, 2005 at 20:35:49 (EDT)
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Comments: today I found out that I tested possitive for melanoma skin cancer. I'm worried and looking for information. |
Visitor: ciaffone Reference: Location: WebSite: Web Info: Contact: Date: Sat, Apr 23, 2005 at 16:10:45 (EDT)
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Comments: No comment at this time..... |
Visitor: Heidi Reference: search Location: florida WebSite: Web Info: Contact: foxh@ahca.myflorida.com Date: Mon, Apr 11, 2005 at 13:06:54 (EDT)
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Comments: No comment at this time..... |
Visitor: Janet Dickhout Reference: saw on MPIP bulletin board Location: toronto, canada WebSite: Web Info: Contact: jdickhout@sympatico.ca Date: Tuesday, Apr 05, 2005 at 23:46:56 (EDT)
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Comments: so much to learn, so little time! |
Visitor: susan Reference: google Location: Fairfax Virginia WebSite: Web Info: Contact: sjk9212@cox.net Date: Fri, Feb 18, 2005 at 22:26:56 (EST)
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Comments: Please help. I was diagnosed with melonoma on my back. After a wide deep incesion and removal of one lymph gland under my arm.The one lymph gland showded a trace amount of melanoma. The remaing glands were removed and they were found negative.I have been on Interferon Iv for the past twentie days and I'm due to start the shots next week. I have never been so sick in my life. Please let me know if anyone has had the same responce???? |
Visitor: Malachi Tustison Reference: Location: WebSite: Web Info: Contact: Date: Tuesday, Feb 08, 2005 at 11:20:19 (EST)
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Comments: Hay grandpa how you doing give me a call love ya Malachi! |
Visitor: Aleandra Reference: google research Location: US WebSite: Web Info: Contact: aleandra2003@yahoo.com Date: Mon, Feb 07, 2005 at 14:05:17 (EST)
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Comments: No comment at this time..... |
Visitor: stacy coltrin Reference: Location: WebSite: Web Info: Contact: stacycva@yahoo.com Date: Wed, Feb 02, 2005 at 10:30:34 (EST)
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Comments: My mother-in-law had malignant melanoma. I'm concerned about the genetic implications concerning my children. How prevalent is melanoma in teenagers? |
Visitor: Katie Lisi (Tustison) Mike's little sister. Reference: Pete Tustison (my dad) Location: Wisconsin WebSite: NA Web Info: NA Contact: katiemom21@netzero.com Date: Sun, Jan 30, 2005 at 20:43:30 (EST)
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Comments: No comment at this time..... |
Visitor: Bronwyn Reference: Location: WebSite: Web Info: Contact: bronwyn@peterkrolltiles.co.za Date: Tuesday, Jan 18, 2005 at 06:49:52 (EST)
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Comments: I have stage 4 of this horrid thing!!! I live in South Africa and have been recieving care at the state hospital - the doctors there say I am not a candidate for chemo or radiation. I have had two ops to date am young and otherwise healthy. Going through the comments posted I see lots of reference to Inter.....chemo no doubt. My query to anyone who can respond is - why am I not on chemo? Surely it would help me? Please ask your doctors for me I will furnish more info if needed? Perhaps because I have metastatic desease the hospital thinks I am a goner in any case and not worth the treatment - I am not wealthy - health care here is super exclusive - can anyone recommend anything else - all correspondance is welcome. Stay strong. *Bronze*** |
Visitor: Ernie Cornish Reference: on line links Location: FL WebSite: Web Info: Contact: Cornish2401@comcast.net Date: Tuesday, Jan 11, 2005 at 18:10:07 (EST)
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Comments: My husband has melanoma and we are looking into teatment options. He just finished radiation and will start chemo in two weeks. I just hope that we are doing the est treatment program. Mike is 34 and I don't want to loose him. I love him so much. |
Visitor: tiffany autrey Reference: a understanding of melanoma Location: c.a WebSite: Web Info: Contact: tiffanya216@sbcglobal.net Date: Sun, Jan 09, 2005 at 00:29:57 (EST)
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Comments: I'm trying to understand what the dr's say my 1 year old son might have in one form or another |
Visitor: Amanda Reference: surfing the internet Location: Australia WebSite: Web Info: Contact: coastgirlao@hotmail.com Date: Thurs, Jan 06, 2005 at 08:45:14 (EST)
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Comments: I don't know what exactly I'm looking for....basically it scares me that so many people have this cancer and how much people suffer from it. I have Stage IV Melanoma and are due to have a tumour in my lung and on my neck removed in a couple of weeks. I feel like I'm too young at 33 to have this but realise you don't get to choose. I didn't know whether to leave a message as to do this makes it more real and I'm already scared enough. I do however wish with all my heart that this was something nobody had to deal with...family, friends and whoever this is happening to personally. It is hard to look at your mortality while trying to be positive...as I say to my friends I'm doing this the only way I know how...you're not given a book on this and as each of us will have a different outcome so will we deal with this differently. My heart goes out to you and I hope for your life to become as normal and carefree as it once was. |
Visitor: ROBYN MILLER Reference: RESEARCHED BLACK RIBBONS ON THE WEB Location: NEW TRIPOLI PA. WebSite: Web Info: Contact: NEWTRIPOLI7@AOL.COM Date: Mon, Jan 03, 2005 at 12:32:32 (EST)
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Comments: I HAVE MALIGNANT BLUE CELL NEVUS THAT IS EXTRAORDINARILY RARE, AND HAVE HAD NO LUCK FINDING OTHERS LIKE MYSELF. I HAVE TRIED TO ORDER BLACK RIBBONS AND BUTTONS TO DISPLAY, HOWEVER I HAVE HAD NO LUCK GETTING THROUGH PAYPAL?...COULD YOU HELP ME? |
Visitor: k. j. washburn Reference: surfing Location: texas WebSite: Web Info: Contact: annahaz107@earthlink.net Date: Mon, Dec 27, 2004 at 16:53:43 (EST)
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Comments: diagnosed with melanoma stage 3. melanoma appeared on side of left knee cap. had surgery and lymph nodes removed from left leg. I will be starting interferon in Jan, 2005. Any suggestions. I am 2.5 years from retirement. Alot of worry. Diagnosed in Sept. of 2004. Infection set in delayed treatments. Any support or information. Thanks |
Visitor: Roger Carr Reference: Google Search Location: Fredericksburg, VA WebSite: Sun Clothing, etc. Web Info: Sun Protective Clothing Store Contact: roger_c4@yahoo.com Date: Tuesday, Nov 16, 2004 at 17:51:34 (EST)
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Comments: Thank you for getting the word out on preventing skin cancer. |
Visitor: Jo Stover Reference: Surfing internet about Mellanoma Location: Oakman,Ala. WebSite: Web Info: Contact: bjstover@tds.net Date: Fri, Nov 12, 2004 at 23:22:37 (EST)
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Comments: I've enjoyed this site.My Daughter Donna has Melanoma.She has had seven surgeries.Sents she had that mole removed behind her right ear in Feb.of this year.All of her limpnodes has been removed.She is taking a shot leukine.She will be taking Radiation the first of Dec. |
Visitor: Jo Stover Reference: Location: Oakman,Ala. WebSite: Web Info: Contact: bjstover@tds.net Date: Sun, Nov 07, 2004 at 14:47:56 (EST)
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Comments: No comment at this time..... |
Visitor: Liz Cratty Reference: Location: Eugene, Oregon WebSite: Web Info: Contact: crattys@earthlink.net Date: Tuesday, Oct 26, 2004 at 12:01:36 (EDT)
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Comments: This is a WONDERFUL website. Thanks so much, Pete. I am restlessly searching for more and more information since my diagnosis with Stage II and wide margin excision 16 months ago. I can't shake the feeling that the shadow continues to dwell within... The local Cancer Center sponsors a great meditation class that I've been attending. |
Visitor: Linda Talbott Reference: MEL-L Location: Kansas City, MO WebSite: Prevention and Care of Melanoma Web Info: A patients guide to care of melanoma Contact: Linda@sunblitz.com Date: Fri, Oct 22, 2004 at 17:53:59 (EDT)
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Comments: Pete, The site looks great! Nice job of gathering a world of helpful information. |
Visitor: Julie Farsetti Reference: looking up Melanoma on the Internet Location: Louisville, KY WebSite: Web Info: Contact: julanoma@yahoo.com Date: Fri, Oct 15, 2004 at 17:41:22 (EDT)
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Comments: Great website! I was diagnosed with MM Feb 9, 2004 and have been battling it since. I had 3 surgeries (one to remove melanoma and 2 more to remove lymph nodes from my left side..neck and underarm) during Mar and am currently on Interferon injections til approx next Apr. It's a tough battle but I believe a positive attitude is powerful. So far all is going well, in terms of no reoccurence, and I hope it stays that way. Yes, it is hard to stay positive all the time but I keep trying!! Please email me anytime!! I could use some support friends (as well as be one). All our family (husbands and mine) live up in MI while we are in KY. My sister is in MN. |
Visitor: donnie & linda forbis Reference: post from mpip Location: nc WebSite: Web Info: Contact: dforbis3@carolina.rr.com Date: Sun, Sep 12, 2004 at 23:32:28 (EDT)
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Comments: wonderful site.thank you donnie & linda |
Visitor: Kathi Hiltz Reference: Daughter was dx with MM 2000 Location: Nottingham, Maryland WebSite: Web Info: Contact: hiltz@comcast.net Date: Sun, Sep 12, 2004 at 11:44:42 (EDT)
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Comments: Great site with a lot of info. Prayers to all who are fighting the damn BEAST..I hate it. |
Visitor: Judy Wray Reference: web search Location: Alabama WebSite: Web Info: www.mpip.org/bb Contact: Date: Sun, Sep 12, 2004 at 10:19:20 (EDT)
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Comments: visit www.mpip.org/bb. for info and support |
Visitor: Beverly Harkleroad Reference: internet site on melanoma Location: Pensacola Fl WebSite: Web Info: Contact: islandvu@bellsouth.net Date: Thurs, Sep 02, 2004 at 20:43:30 (EDT)
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Comments: I lost my beloved daughter, Jayne Dority on Jan.4, 2004 to melanoma. What a horrible disease. She left a husband and a 7 year old daughter, and a grieving mother, sister and brothers |
Visitor: HELEN MIRANDA Reference: INTERNET Location: CO. WebSite: MELANOMA WARRIORS Web Info: Contact: MIRANDAJ@COMCAST.NET Date: Tuesday, Aug 17, 2004 at 08:58:37 (EDT)
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Comments: I NEED ALL THE HELP I CAN GET. MY BROTHER HAS HAD MELANOMA FOR 18 YEARS AND IS IN WHAT THEY CALL STAGE V HE WAS NOT SUPPOSED TO BE WITH US TWO YEARS AGO BUT HE IS STILL FIGHTING IT AND I DO NOT THINK HE HAS BEEN OFFERED ANY CHANCES LIKE I HAVE READ ABOUT AND I DO NOT KNOW WHY AFTER ALL HE HAS SERVIVED WHAT THE DOCTORS SAID HE WOULD NOT. HE HAS HOSPICE COMMING TO HIS HOUSE ONCE A WEEK AND THEY DO NOT SUGGEST ANYTHING ELSE THEY ARE JUST WAITING FOR HIM TO DIE. HE IS 62 AND HAS MANY REASONS FOR LIVING. THE ONLY TREATMENT HE HAS HAD WAS THEY TOOK ALL THE GLANDS OUT OF HIS NECK SOME YEARS BACK AND HALF OF A LUNG. HE HAD CHEMO 5 YEARS AGO AND HE WAS STILL WORKING AS A ROOFER. SINCE HE HAS BEATEN ALL OF THE ODDS SO FAR I DO NOT KNOW WHY HE IS NOT OFFERED A CLINICAL TRIAL. WOULD APPRECIATE ANY COMMENTS OR SUGGESTIONS AND MAY GOD BE WITH ALL OF YOU. HELEN MIRANDA |
Visitor: Debra Caran Reference: surfing for info on melonoma Location: Florida WebSite: Web Info: Contact: carandebra@aol.com Date: Fri, Jun 25, 2004 at 19:49:20 (EDT)
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Comments: My father had a melonoma taken out 2 years ago. Now it has come back. It was found in one of his lymph nodes. We are just starting...with the oncologist. But we are all very scared. He is going to have an MRI of the brain and upper body and more lymph nodes taken out.... |
Visitor: Benny Keil Reference: search engine Location: TOLEDO WebSite: Web Info: Contact: darkmoon_120aaa2msn.com Date: Sat, Jun 12, 2004 at 23:19:08 (EDT)
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Comments: No comment at this time..... |
Visitor: Rebecca Reference: looking at other melanoma sites Location: New Hampshire WebSite: Web Info: Contact: d_and_b_brown@hotmail.com Date: Mon, May 31, 2004 at 18:32:17 (EDT)
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Comments: A few weeks ago, my brother-in-law, also my ex-boyfriend, and very close friend died of melanoma at the age of 21, only one day younger than me. He was diagonosed 2 1/2 years ago when a mole on his back grew very quickly and he had it biopsied, it was in his left arm, then the right side of his back, and then numerous tumors throughout his lungs. He went through a surgery that removed the lymph system in his left arm, interferon treatments, a vaccine, prolueken treatments, and experimental chemo treatments, one day he woke up with a migraine, got some pain meds, went to sleep, and never woke up, he was rushed to the local hospital and after a scan found he had an aneurysm. He was rushed to Mass General, where another scan 2 hours later revealed extensive bleeding that went into his brain stem, as well as two tumors that had grown in the past 3 weeks since his last scan. He passed away early the next morning after we took him off the respirator, he went peacefully. This disease stole my friend and I don't think I will ever be over it, but I want to do whatever I can, through making people aware of it, as well as volunteering and raising money...any events in my area anyone knows about, please e-mail me...My thoughts are with everyone who is affected by this disease |
Visitor: Linda Reference: search Location: Maryland WebSite: Web Info: Contact: skypie@adelphia.net Date: Sun, Apr 25, 2004 at 18:12:57 (EDT)
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Comments: I am a 47 year old mother of 4. I have been diagnosed with malignant melanoma. I am going to have a sentinel node biopsy done and surgery with a skin graft done in a couple of weeks. I am so scared. Any words of wisdom would be appreciated. |
Visitor: Lynn Reference: Location: Tennessee WebSite: Web Info: Contact: spring_2001_37061@yahoo.com Date: Fri, Apr 23, 2004 at 15:51:13 (EDT)
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Comments: My husband has stage 4 metastasis melanoma.We found out in Oct.2003.What should i expect,is there any cure? |
Visitor: Lynn Reference: Location: Tennessee WebSite: Web Info: Contact: spring_2001_37061@yahoo.com Date: Fri, Apr 23, 2004 at 15:33:26 (EDT)
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Comments: No comment at this time..... |
Visitor: Larry Brixey Reference: Looked up Melanoma cancer patient funding Location: Ventura, California WebSite: Web Info: Contact: brixeylarry@yahoo.com Date: Sat, Apr 17, 2004 at 17:15:35 (EDT)
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Comments: Hello A very dear friend of our family has just been diagnosed with level 4 Melanoma Cancer Elizabeth Kuhn age 45 from Arkansas City, Kansas. Liz and her family do not have medical Insurance or the money to help pay for the treatments! Liz is a terrific mother of Molly who is 10, and a terrific wife to Mel Kuhn who is a Plumbing and heating contractor. Liz is a terrific lady and has helped her small community for many years, and I am now asking for the help of those who have experienced this terrible disease. Liz is only 45 years young and has done so much , for so many people in the past and that is why Im asking for donations to help with her treatments. The docator say's that Liz will be very sick until she beats this Melanoma Cancer. Please let me know if anyone can help the Kuhn Family, It would be very much appreciated. Thank you & God Bless |
Visitor: Dan Reference: From Google Location: Washington WebSite: Web Info: www.melanoma-cancer-cure.com Contact: Date: Thurs, Mar 11, 2004 at 21:35:54 (EST)
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Comments: GO READ ABOUT THIS !!!! http://www.melanoma-cancer-cure-com Claims to have made Melanoma Tumors Disappear in a matter of Days !!! Who Knows... when there's nothing else to try ... and no time... we got to try Anything !!! Right ?? God Bless !!! Dan |
Visitor: Dan Reference: From Google Location: Washington WebSite: Web Info: Contact: Date: Thurs, Mar 11, 2004 at 21:29:50 (EST)
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Comments: My Dad has Melanoma (age 62)... doctors are currently giving him Radiation treatment for tumors on his brain... and trying to give treatment for tumors in his lungs ... I have been looking for help ... I have found a good website that may help people ... www.melanoma-cancer-cure.com ... Go Read about it!!! It's not for Everyone ... but has NO claims to have no side effects ... but unbelievable results have been attained by people who have tried this product... Since this cancer is not curable... my Dad has No Time but 6 to 12 months to live... so it's Time to TRY Everything we can. God Bless!! Dan |
Visitor: Kim Reference: looking for metastatic melanoma sites Location: Newton,NH USA WebSite: Web Info: Contact: k_maille@yahoo.com Date: Fri, Mar 05, 2004 at 18:26:05 (EST)
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Comments: My family just found out my father has 2 metastatic melanomas in his brain and it is unoperable so I am looking for any information I can find. |
Visitor: MGBADA JOE ABA NAIJA Reference: FROM A FRIEND Location: ABA,NAIJA WebSite: http://NONE Web Info: NOTHING Contact: MGBADAJOE@ABA.COM Date: Wed, Feb 11, 2004 at 13:03:55 (EST)
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Comments: I LOVE THIS PAGE. PLEASE, KEEP UP THE GOOD WORK. |
Visitor: George Wilson Reference: www.siccode.com Location: Sea Girt, NJ WebSite: Worldwide Business Directory Web Info: Contact: info@siccode.com Date: Wed, Feb 04, 2004 at 23:23:53 (EST)
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Comments: I recently had a melanoma removed from my scalp near the neck area at NYU in NYC. Furtunately it was caught early and I will not need any more follow up as far as further treatment. I had a younger brother who had a melanoma in 1979 so it appears to run in my family. I was so careful yet I almost let it go because I could not see it. Please advise people to check their scalps or have their barber check for them. I was a lucky person. |
Visitor: Deborah Reference: searching the web Location: Orlando, Florida WebSite: Web Info: Contact: Debbiewardpac@aol.com Date: Mon, Feb 02, 2004 at 23:48:30 (EST)
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Comments: I am a 38 year old mother of two and Emergency Room Physician Assistant and was diagnoses with MM in Sept. 2003. I had a Clark IV, Breslow thickness of 1.5 on my chest wall. I had surgery and SLM with no mets! I was diagnosed with a Melanoma In-situ on my leg in Nov. 2003, had wide excision.Watching closely for the next one... |
Visitor: Barb Reference: Location: Philadelphia WebSite: Web Info: Contact: Tessiecat@msn.com Date: Thurs, Jan 29, 2004 at 08:19:40 (EST)
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Comments: My dad has stage IV malignant melanoma, spread now to his lungs.Tried to get him to be more aggressive (docs have said he's got 6 months)but he keeps going back to one doc that says the tumors in his lungs are nothing to worry about, and he wants to believe him.I'm so sad. |
Visitor: Bill Witmer Reference: Location: Slue-Witmer Skin Imaging Centers WebSite: Web Info: Contact: B.Witmer@Slue-Witmer.com Date: Fri, Jan 16, 2004 at 16:37:04 (EST)
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Comments: Just wanted to let you know that I have left the University of Pennsylvania and opened a skin imaging business in the Philadelphia area concentrating on Total Body Photography. We are a division of Canfield Scientific, Inc (developers of the Dermagraphix software) using very high resolution digital imaging for our photography. Our office here in King serves the eastern PA, NJ and Delaware market and we have a satellite office at Johns Hopkins serving Maryland, DC and virginia. Our web site should be up in about 3-4 months.I'll let you know when we're up and perhaps we can link to one another. Thank you for helping the public be informed. Bill |
Visitor: Lisa Bremmerkamp Reference: melanoma search online Location: Missouri WebSite: gbgarth Web Info: Contact: gbgarth@hotmail Date: Wed, Jan 07, 2004 at 21:09:13 (EST)
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Comments: My Dad has terminal melanoma. He is currently stage IV and has been told that no treatment will help him. He is doing his best to stay comfortable and happy until the end. |
Visitor: Debbie Borcherding Reference: melanoma/google.com Location: Dublin, Ohio WebSite: Web Info: Contact: luvs2shop022@aol.com Date: Sat, Jan 03, 2004 at 11:23:21 (EST)
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Comments: My father, Richard Shreffler, died on Feb 13,2003 from metastatic melanoma. I just wanted to find a place where I could give some $ for research. My son is celebrating his 11th birthday on Jan 14th. In lieu of presents, we are asking that the guests bring a donation for melanoma research. Can you help us with a phone # or an address? |
Visitor: Richard kirk Reference: google Location: San Di ego CA USA WebSite: Web Info: Contact: rkirk@cox.net Date: Tuesday, Dec 16, 2003 at 16:48:50 (EST)
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Comments: Have my secon round with melanoma in 18 months |
Visitor: David W. McGinnis Reference: web search about Melanoma Location: Albuquerque, NM WebSite: Web Info: Contact: mcginnisdw@msn.com Date: Fri, Nov 21, 2003 at 12:48:01 (EST)
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Comments: I am 49 year old male, found out 11/19/03 that I have Melanoma.... having surgary next tuesday to try to remove it... |
Visitor: SHIRLEY MULLINS Reference: JUST LOOKED UP Location: UK WebSite: Web Info: Contact: Date: Wed, Oct 29, 2003 at 20:37:59 (EST)
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Comments: MY MOTHER DIED FROM MESTATIC MELANOMA THIS MONTH FIGHTING THIS DESEASE FOR 4AND HALF YEARS THIS WAS A MOLE ON HER STOMACH NOT SUN RELATED PEOPLE SHOULD OPEN THEIR EYES THIS IS NOT JUST SUN RELATED AND WE HAVE LOST A MUCH LOVED MEMBER OF OUR FAMILY THORUGH IT |
Visitor: Dauhnna Reference: a link Location: Texas WebSite: Web Info: Contact: dauhnnakyle@aol.com Date: Wed, Oct 29, 2003 at 01:02:26 (EST)
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Comments: I am looking for people who have gone through Melanoma treatment/ Interferon... I need support. |
Visitor: Tammy Reference: Location: Tennessee WebSite: Web Info: Contact: tavia@twlakes.net Date: Sat, Oct 25, 2003 at 23:44:04 (EDT)
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Comments: My husband was just diagnosed with metastatic melanoma of the lungs. No cure. Prognosis not good. His doctor recommended him to go to NIH in Bethasda, Maryland. I am trying to find out more information on the place and also, if anyone has been there. Or if anyone has been in a clinical trial for this type cancer. I would sincerly appreciate any information that I can receive. God Bless. |
Visitor: SP Reference: Search Engine Location: Florida WebSite: Web Info: Contact: srose1953@hotmail.com Date: Thurs, Oct 16, 2003 at 21:49:10 (EDT)
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Comments: Great educational and informative site, easy to navigate, quick to load. Our 38 year old cousin was just diagnosed with Stage III melanoma. It started when he bumped a mole that has been on his back for years. The thing bled for 2 weeks and wouldn't heal. He went to the doctor for it, and next thing you know he's in surgery 10 hours, wound up with a 12X14 skin graft on the area (which isn't healing, by the way), and positive Sentinel lymph biopsy. He is to have further surgery to remove more lymph nodes in the area next week, and undoubtedly will start chemical treatment. PET scans are pending. He lives near Philadelphia, has a wife and 3 young sons. Pray for us! |
Visitor: Debbie Thompson Reference: ask jeeves Location: Paul, Idaho WebSite: Web Info: Contact: dthompson@sd331.k12.id.us Date: Wed, Oct 15, 2003 at 14:52:26 (EDT)
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Comments: No comment at this time..... |
Visitor: teresa howell Reference: websearch search Location: south carolina WebSite: Web Info: Contact: nurse4doug4ever@aol.com Date: Mon, Oct 06, 2003 at 04:59:38 (EDT)
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Comments: i was diagnosed with melanoma feb 4, 2003. i had the moh's surgery and thank god my cancer was not in the lymph nodes. however, what concerns me the most, i saw a doctor 3 years ago and was told that i did not have melanoma and this was even after a biopsy so what happened to the area in those 3 years i will never know. i just wish america was more educated in this area. i also hate the phrase oh melanoma is nothing but skin cancer i want to cry so bad. i want to scream and yell and tell everyone this is serious please don't react this way. i am cured now. i fear everyday the melanoma will return. i have seen with my own eyes what melanoma does to a person. i do not want to be like that person. thanks |
Visitor: carole ann perlino Reference: looking for support groups Location: WebSite: Web Info: Contact: perlinoc@comcast.net Date: Thurs, Oct 02, 2003 at 21:05:18 (EDT)
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Comments: MY SON DIED FROM MELANOMA IN 2001. HE WAS 29 YEARS YOUNG. THIS IS A TERRIFYING DISEASE. MY PRAYERS ARE WITH ANYONE WHO HOLDS THIS DIAGNOSIS. |
Visitor: Jessica Reference: skin cancer Location: Indiana WebSite: Web Info: Contact: jlkpah_69@hotmail.com Date: Mon, Sep 22, 2003 at 09:56:58 (EDT)
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Comments: No comment at this time..... |
Visitor: Debby Reference: I was looking for the site Location: ohio WebSite: Web Info: Contact: debeday2003@yahoo.com Date: Sun, Sep 21, 2003 at 17:03:39 (EDT)
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Comments: I have had melanoma and bladder cancer |
Visitor: jeff Reference: Location: WebSite: Web Info: Contact: Date: Sun, Sep 07, 2003 at 22:53:04 (EDT)
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Comments: No comment at this time..... |
Visitor: Tim Hauth Reference: Location: Portland, OR WebSite: Web Info: Contact: tjhauth@yahoo.com Date: Thurs, Sep 04, 2003 at 15:01:05 (EDT)
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Comments: I recently completed a year of interferon treatment for stage 3 melanoma. I would like to hear from any other people out there in a simular situation. I feel great but I know I have to live with this thing lurking in the shadows. Also, there seems to be a lack of support gruops in my city for Melanoma. Any suggestions? I would appreciate any info. Thanks Tim Hauth |
Visitor: Robert Short Reference: Link from another site Location: Phoenix, AZ WebSite: Web Info: Contact: reshor86@msn.com Date: Wed, Sep 03, 2003 at 16:58:49 (EDT)
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Comments: great site. a lot of good information. thank you. |
Visitor: Mary Reference: search Location: michigan WebSite: Web Info: Contact: littleredaunt@hotmail.com Date: Sun, Aug 31, 2003 at 00:46:30 (EDT)
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Comments: Diagnosed with Melanoma 10 years ago shortly after my daughters birth. |
Visitor: Sylvia Tustison Reference: Donna Gerry's Location: Tucson, Az WebSite: None Web Info: Contact: none Date: Thurs, Aug 28, 2003 at 18:47:20 (EDT)
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Comments: Good job, Pete! |
Visitor: Tamara Reference: Google Location: Florida WebSite: Web Info: Contact: TamaraD1@yahoo.com Date: Wed, Aug 13, 2003 at 12:26:09 (EDT)
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Comments: ~My mom, stage4 melanoma..has been putting up a fight for 2 years~ |
Visitor: Lou Reference: Search Engine Location: San francisco WebSite: Web Info: Contact: LBarbarell@aol.com Date: Mon, Aug 11, 2003 at 20:09:55 (EDT)
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Comments: No comment at this time..... |
Visitor: Esther Cole Reference: Just checking out the web on Melanoma Location: Pennsylvania WebSite: Web Info: Contact: tcole_pa@yahoo.com Date: Sun, Aug 03, 2003 at 22:48:20 (EDT)
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Comments: Yes you can survive Melanoma, I am a survivor I had radical surgery in Oct. 96 and came back in Jun 97 it was on my vagina area and removal of my lympf nodes,in my legs at Tampa general hosp.They saved my life at this hospital. I'm very thankful. Esther Cole |
Visitor: d Reference: Location: WebSite: Web Info: Contact: d880640@hotmail.com Date: Wed, Jul 30, 2003 at 16:46:17 (EDT)
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Comments: People healed of Cancer,Parkinson's Disease, Neurofibromatosis, Rare Blood Disease at: Baltimore Christian Faith Center 10308 Liberty Road Randallstown, Md 21133 (410) 655-3777 http://www.bcfc.org |
Visitor: Donna Wright Reference: MSN Location: South Carolina WebSite: Mike's Page Web Info: Contact: Zebralady@webtv.net Date: Mon, Jul 28, 2003 at 07:41:03 (EDT)
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Comments: I know the value of having other's in similar situations with this nasty disease to talk to. Hopefully someone out there may have some suggestions as to where we may check to find help for my husband. He has been through so much already but we feel like he's reached a stumbling block for now b/c he's being turned down for assistance because of his blood type and the fact that he's been taking temador so isn't eligible for most of the newer clinical trials. |
Visitor: Brian Rush Reference: Google Location: Wichita KS WebSite: Web Info: Contact: rushdoggspam@cox.net Date: Sun, Jul 20, 2003 at 17:44:20 (EDT)
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Comments: Go in for surgery Jul 29th, 2003. Just found out I have melanoma. Hope it hasn't spread, but we will see. |
Visitor: Morag Reference: Location: Fife Scotland WebSite: Web Info: Contact: morag_duff@hotmail.com Date: Mon, Jul 07, 2003 at 17:03:09 (EDT)
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Comments: It is now 4 years since my diagnosis and treatment I am one of the lucky ones, so far. I also heard the comment it's only skin cancer and I work in the nursing profession |
Visitor: Karen Reference: Mike's Page Location: B.C., Canada WebSite: Web Info: Contact: karenarlene@shaw.ca Date: Sun, Jul 06, 2003 at 05:52:31 (EDT)
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Comments: My husband is awaiting excision of a malignant mole from his stomach. The dermatologist assessed it with some kind of instrument in his office and determined it to be 4-6mm in depth. That's all we know at the moment. We are in our 30's and have 3 young children. I am quite concerned, but my husband seems to think I am overreacting and that everything will turn out fine. He has avoided looking over any of the literature yet, and is keeping as busy as possible I think to avoid doing so. I'm thinking this must be a dream. So now to spend the summer trying not to worry as I await his official dx after the surgery in Sept. Assuming the only course of attack at the moment is education. Any feedback or comments welcome! Thinking of all of you and what brave people you are. Karen |
Visitor: Melody Pendleton Reference: by searching melanoma patients Location: Mapleton, Utah WebSite: Web Info: Contact: makettle12@netzero.com Date: Wed, Jul 02, 2003 at 00:00:25 (EDT)
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Comments: Would like to find other people who have refused any medical treatment for their melanoma except maybe alternative and surgery. |
Visitor: Mary Alice Reference: Location: Pascagoula , MS WebSite: Web Info: Contact: mbma5411@bellsouth.net Date: Thurs, Jun 26, 2003 at 18:26:57 (EDT)
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Comments: I lost my first husband 21 years ago to melanoma. It was a long hard battle and a horrible death. My brother was diagnosed about 18 months ago and my 29 yr old daughter diagnosed this week. The Dr's are in the process of setting appts with surgeon now. I hate this disease. Thanks so much for trying to educate the public, cancer pts. and their families. God bless you! |
Visitor: LINDA RUMERY Reference: Location: colorado WebSite: Web Info: Contact: RUMERYC21@AOLCOM Date: Thurs, Jun 05, 2003 at 06:23:27 (EDT)
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Comments: No comment at this time..... |
Visitor: angie Reference: just searching the web Location: chicago WebSite: do not have one Web Info: Contact: angiebus@email.dom.edu Date: Mon, Jun 02, 2003 at 21:37:10 (EDT)
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Comments: I have just been diagnosed with melanoma of the vagina. Am told this is very rare. They want to do very radical surgery removing my vagina, bladder and rectum...anyone hear of this...I am just devasted...should I seek a second opinion? |
Visitor: Cheryl Andrews Reference: Location: Houston, Texas WebSite: Web Info: Contact: Candrews@oxid.net Date: Mon, Jun 02, 2003 at 17:08:10 (EDT)
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Comments: My Mother was diagnosed with Ocular Melenoma in 94 and passed away in 2002. This is a horrible disease but my Mother took it like a Champion. I had, and have so much admiration for her.. She was a wonderful and loving part of our lives. I pray a cure is found so others won't have to endure the pain and suffering that comes with this disease |
Visitor: Cheryl Andrews Reference: Location: Houston, Texas WebSite: Web Info: Contact: Candrews@oxid.net Date: Mon, Jun 02, 2003 at 17:02:49 (EDT)
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Comments: No comment at this time..... |
Visitor: Lisa Hines Reference: just surfing for information Location: North Carolina WebSite: Web Info: Contact: lhines@landeng.com Date: Fri, May 16, 2003 at 16:27:25 (EDT)
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Comments: My mother died of melanoma in 1990, it was a battle from hell but she handled it with dignity and grace. I just found out that my lawyer's husband has been told he had malanoma and it is in his brain he is in his late 30's. I know things are getting learned about malanoma eveyday I hope one day soon they will be able to have a cure for this terrible skin cancer. |
Visitor: dude Reference: googling Location: uk WebSite: Hardwood Conservatories Web Info: Hardwood Conservatories Contact: submit@smileys.co.uk Date: Thurs, May 15, 2003 at 19:30:36 (EDT)
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Comments: Nice site, thanks for letting me sign in. uk hardwood conservatories uk diy hardwood conservatories uk self build conservatories somerset conservatories uk hardwood conservatories uk diy hardwood conservatories uk self build conservatories somerset conservatories |
Visitor: EAW Reference: Location: Massachusetts WebSite: Web Info: Contact: ewoolbert@aol.com Date: Thurs, May 15, 2003 at 10:40:12 (EDT)
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Comments: My mother was diagnosed last Sep with Melanoma. She had surgery to remove the lesion along with her lymph nodes under her arm. She was on interfuron for 6 months until she displayed stroke-like symptoms and they immediately took her off therapy. Soon after stopping her therapy, she noticed a small spot on her forearm which turned out to be malignant. Then we found another lump on her back around the same area of her original site(they didn't biopsy this one but they told us that was also melanoma). We were told that her chances are slim, 1-3% chance of survival. The doctors ordered a brain scan for next week. We need to make a decision, do we treat her? Or do we just let her live without being treated and enjoy what time she does have left. Any suggestions? |
Visitor: GARY SUTTON Reference: FROMA FRIEND Location: EAST MOLINE,ILL WebSite: GARYWS Web Info: Contact: GARYWSUTTON@AOL.COM Date: Wed, May 07, 2003 at 14:25:11 (EDT)
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Comments: I AM TRYING TO FIND ANYONE THAT HAS RECTAL MELANOMA OR ANY INFORMATION ON THIS TYPE OF CANCER |
Visitor: David Rowney Reference: Google search Location: El Cerrito, California WebSite: Web Info: Contact: daver@uclink.berkeley.edu Date: Wed, May 07, 2003 at 12:20:49 (EDT)
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Comments: Mole found with melanoma on my neck in Mar 2003. Two surgeries in Apr/May 2003. |
Visitor: Amber Baxter Reference: MSN Search Engine Location: Goodland, Kansas WebSite: Web Info: Contact: Date: Thurs, Apr 24, 2003 at 16:28:00 (EDT)
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Comments: My mom was diagnosed with Malignant Melonma two years ago, after extensive treatment she is so far cancer free. Praise the lord! (long story short) I am collecting research for a college speech, hoping to change the ways of some of the young students there and came across your web page! I am sending the info to my mom who is constantly looking for other warriors to support. God bless you all. |
Visitor: m.hatton Reference: Location: WebSite: Web Info: Contact: Date: Mon, Apr 14, 2003 at 11:56:09 (EDT)
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Comments: No comment at this time..... |
Visitor: Nicole Hardison Reference: Search Engine Location: Woodbridge Virginia WebSite: Web Info: Contact: mnful3@msn.com Date: Sun, Apr 13, 2003 at 17:26:13 (EDT)
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Comments: My mom has been diagonsed with maligant melanoma. It has been placed at level 4 with 4.5 in depth. She is going through further tests no matter thoses outcome she will start treatment with infuron for 48 weeks. Everything I seem to read with her depth points to 5 years or less. I was wondering how true that is and if anyone has taken the infuron medicine and how the side effects were. Than my mom is a single mother all kids grown 55 years old. She can use someone to talk to that has or is going through the same. Can anyone help with that? Thank you for your time in reading this. |
Visitor: marty watkins jr Reference: searched Location: long island,ny WebSite: Web Info: Contact: ddarthmart@aol.com Date: Fri, Apr 04, 2003 at 13:45:21 (EST)
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Comments: does anyone know of a manufacture that makes clothes,hats, specifically for melanoma patients? |
Visitor: Mary Royan Reference: Location: Michigan WebSite: Web Info: Contact: maryroyan@hotmail.com Date: Thurs, Mar 27, 2003 at 17:05:17 (EST)
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Comments: My father was recently diagnosed with stage IV malignant melanoma. He had a lymph node removed and part of thumb which is supposed to be the original site. He talks to the doctors tomorrow about additional treatment. Has anyone tried the vaccine?? |
Visitor: pugsly Reference: web search Location: Phoenix, Arizona WebSite: Web Info: Contact: pugsly@cox.net Date: Tuesday, Mar 25, 2003 at 10:24:28 (EST)
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Comments: 43yr old male, reading the site, good information. Was diagnosed last week with Malignant Melanoma on the chest. The mole has grown to 3 sonometers/over 2 inches in length and 1.5 in width. No biopsy done due to size. Will be having wide tissue removal as well as sentinal node biopsy. Both specialist and surger are worried that it is deep and aggressive, yet I have nothing to Stage it with till surgery. All males in my family have died of this including my father 2yrs ago of melanoma of the forehead. I can't find information on recovery time from excisions etc, what the possibility of staging will be with a tumor the size I have. Very anxious. Anyone with information, please email. thanks |
Visitor: dessary rudy Reference: looking up info for a project Location: califorina WebSite: Web Info: Contact: dessaryrudy@yahoo.com Date: Sat, Mar 08, 2003 at 14:57:31 (EST)
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Comments: I am researching melanoma for a school project. If anyone would like to give me info. I would realy appreciate it. |
Visitor: Brent McNamara Reference: Referred by Ed Ruddick Location: New Jersey WebSite: Web Info: Contact: brentmcnamara@comcast.net Date: Sun, Mar 02, 2003 at 21:14:36 (EST)
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Comments: No comment at this time..... |
Visitor: Carol Lamb Reference: Location: Ontario, Canada WebSite: Web Info: Contact: c.lamb@roger.com Date: Sat, Feb 22, 2003 at 15:40:55 (EST)
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Comments: Level 4 Metastatic MM. Completed only five months of Interferon therepy (Should have been one year). Have been taken off it due to effect on liver. I have been told by two different Oncologists that clinical trials are not right for me - to sit back and wait!!! Any info/advice welcome. THANKS! |
Visitor: NICOLA BLAIKKIE Reference: Location: EDINBURGH, SCOTLAND WebSite: Web Info: Contact: Date: Wed, Feb 19, 2003 at 09:02:41 (EST)
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Comments: I AM 21 YEARS OLD AND HAVE BEEN DIAGNOSED WITH A MELENOMA. ALTHOUGH THIS HAS BEEN REMOVED, ALONG WITH MY LYMPH NODES I CANNOT GET OVER THE FINAL FEAR THAT THIS WILL RETURN & NEXT TIME IT MAY BE TO LATE. WHEN ORIGINALLY DIAGNOSED I'D HAD CANCER FOR 18MTHS...IF I DIDN'T KNOW THEN HOW CAN I KNOW THAT I DON'T HAVE IT NOW?? |
Visitor: Kate Reference: surfed from MSN.com search Location: Pittsburgh, PA WebSite: Web Info: Contact: katenate58@yahoo.com Date: Fri, Feb 07, 2003 at 13:39:09 (EST)
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Comments: Jeez, I just was diagnosed with Melanoma in situ--supposedly early stages...but now I'm not so sure... Thanks for the information, I will search here futher! God bless us all! Kate Please keep it all in perspective...enjoy each moment! |
Visitor: rosemarie Reference: by LUCK an GOD Location: claremore, oklahoma WebSite: don't have one Web Info: Contact: Rose4838@aol.com Date: Sun, Jan 26, 2003 at 02:53:27 (EST)
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Comments: Just trying to find peace,just found out about a good friend ,that lost the battle. i tried to help every way i could. she tried to get into the trial study i was in, but got booted out everytime. what i am in is not a trial study. IT IS A GREAT STEP TO CURE MELANOMA CANCER. THIS IS A STEP TOWARD FINDING A CURE, BUT THE BIG DRUG COMPANIES DO NOT WANT THIS, I WAS SUSPOSED TO BE DEAD 4 YEARS AGO. I WAS STAGE 4 MELANOMA, HAD IT TO TIMES, AND GOT RID OF IT BOTH TIMES. IF WE DON'T TAKE A STAND TO FIGHT FOR THE DRUG THAT HAS KEPT ME ALIVE FOR 5 YEARS, PASS THE TIME THEY SAID I HAD THREE TWO SIX MONTHS TO LIVE, AND NOT JUST ME . MANY OTHERS ARE ON THIS VACCINE TWO. IT IS THE BIG DRUG COMPANY'S THAT IS KEEPING THIS OUT OF ARE REACH OF OTHERS. IT HAS COME DOWN TO WHO IS GONNA MAKE THE BIGGEST MONEY IF WE LIVE. THE CURE HAS BEEN THERE FOR 20 YEARS, CAN YOU BELEIVE THAT? IT IS SO. ALL OF THIS HAS BEEN HIDDEN FROM THE ONE'S THAT REALY NEED IT. PLEASE TRY AND HELP ME IN THIS FIGHT TO GET THE DRUG OUT ON THE MARKET THAT CAN CURE MELANOMA CANCER, THE GOVERMENT IS THE ONE THAT NEEDS TO BE ADDRESSED, THEY HAVE KNOWN OF THIS CURE FOR ALONG TIME. PLEASE FEEL FREE TO E-MAIL ME AT ROSE4838AOL.COM GOD BLESS |
Visitor: Sandra Drach Reference: search engine Location: Florida WebSite: Web Info: Contact: sdroch@tampabay.rr.com Date: Tuesday, Jan 14, 2003 at 19:55:19 (EST)
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Comments: I had level 2 melanoma removed from back 1.5 years ago and I still am confused/anxious about my future health. I often feel the need to read as much about malanoma as possible hoping maybe being informed will put me one step ahead of the game. Sandy |
Visitor: Kathleen Reference: Mealnoma search Location: Chambersburg, PA WebSite: Web Info: Contact: leeny1223@ yahoo.com Date: Sun, Jan 12, 2003 at 10:33:41 (EST)
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Comments: I was diagnosed with Malignant Melanoma eight years ago. I have never had a reaccurance, thank God. I was origionally told that prgnancy would increase my risk of reaccurance , but I can not find any information supporting that now. If you have heard any thing please e-mail me. Thanks so much. |
Visitor: michelle rhodes Reference: random search on melanoma Location: butler, pa WebSite: Web Info: Contact: shelly150@zoominternet.net Date: Sun, Dec 29, 2002 at 15:27:33 (EST)
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Comments: thank you for this page, it is a real inspiration for me and i'm sure many others. I'm 23 years old and have melanoma twice and am going to have another wide tissue excision soon for dysplastic cells found in 3 different moles. thanks for all the information |
Visitor: olga Reference: search Location: Illinois WebSite: Web Info: Contact: ishuval@yahoo.com Date: Sun, Dec 29, 2002 at 11:38:09 (EST)
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Comments: My mom is diagnosted with milignant melonoma stage 4 and it spread to other parts; surgery is not the options. Doctor wants to start chemotherapy. She feels good for know, and I afraid about future. She is also diabetic and has serious heart condition. |
Visitor: olga Reference: search Location: Illinois WebSite: Web Info: Contact: Date: Sun, Dec 29, 2002 at 11:38:03 (EST)
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Comments: My mom is diagnosted with milignant melonoma stage 4 and it spread to other parts; surgery is not the options. Doctor wants to start chemotherapy. She feels good for know, and I afraid about future. She is also diabetic and has serious heart condition. |
Visitor: Margaret Jennings Jeffrey Reference: Location: East Helena Montana WebSite: Web Info: Contact: mJenningsjeffrey@state.mt.us Date: Thurs, Dec 26, 2002 at 13:12:26 (EST)
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Comments: No comment at this time..... |
Visitor: Laurie Erb Reference: Location: New Jersey WebSite: Web Info: Contact: erbs4@aol.com Date: Sun, Dec 22, 2002 at 13:18:51 (EST)
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Comments: My husband just had surgery after a mole removed from his forearm was diagnosed as melanoma. the mole was only .32mm so we feel fortunate. The doctor said unfortunately there was a point of focal regression. Can anyone give us further information about this. Thank you. |
Visitor: Carrie Reference: searching for info on ocular melanoma Location: Kentucky WebSite: Web Info: Contact: tkisler@hopkinsville.net Date: Thurs, Dec 12, 2002 at 15:28:26 (EST)
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Comments: Daughter, age 33, diagnosed during routine eye exam with small melanoma (pre-melanoma) on back of eye. Opthamologist recommended photographs (done) and return visit in 4 months. Since then I have been searching for info and current clinical trials, etc. |
Visitor: Jennie Robinson Reference: web search Location: Phx Az WebSite: I don't have one Web Info: Contact: jamr96@msn.com Date: Wed, Dec 11, 2002 at 17:41:41 (EST)
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Comments: My father was diagnosed in Jun of this year with cancer which at the time was an unknown type of cancer...the cancer was found in his lower rectum and colon area...he was given a colostomy and dr's said it looked good...during surgery they took several biopsy's of his lympnoids and 36 out of 39 had cacncer in them....he was told he had squamous cell carcinoma which affected and attacked his rectal and colon area... In Aug of this year he was given 6 months to a year to live.....Wow....what a blow and horrible thing we have had to deal with,,..Our family has never had to deal with anyone close or not who has had this deadly disease....I have searched the internet to find different things about this type of cancer and cannot..I would like to further read up on the different stages of this cancer....if anyone can help it would be greatly appreciated....Thank you and god bless all who is fighting to stay alive and beat this..... Jennie |
Visitor: Charles O. Grice Reference: Melonoma research Location: Aiken, South Carolina WebSite: Web Info: Contact: cog@atlantic.net Date: Sun, Nov 17, 2002 at 04:31:04 (EST)
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Comments: I've been living this life of hell for twelve and one half years..told I had one year to live..have had 196 extractions, mostly dysplastic nevi (preliminary malignancy). .three have been melanomas and have entered the blood stream. I just turned 51 and am taking it one day at the time to see 52. God bless you all! |
Visitor: Pam Reference: melanoma search Location: Clermont, Florida WebSite: Web Info: Contact: surfkauai@msn.com Date: Sun, Oct 13, 2002 at 12:51:19 (EDT)
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Comments: I have recently undergone surgery to remove tissue on the back of my thigh, and a lymph node in my groin. All biopsies came out clear! I have felt God's Peace with me throughout the ordeal. I don't know how people without faith undergo such ordeals. May God grant each of the melanoma patients who view this website his peace that goes with the sacrifice of His Son. |
Visitor: Linda Gorman Reference: Mike's Page Location: PA WebSite: Web Info: Contact: ruglady@comcast.net Date: Thurs, Oct 10, 2002 at 16:30:32 (EDT)
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Comments: No comment at this time..... |
Visitor: Jim Reference: Location: Calif. WebSite: Web Info: Contact: jimhealthy@aol.com Date: Tuesday, Oct 08, 2002 at 13:19:18 (EDT)
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Comments: No comment at this time..... |
Visitor: ster Reference: science progect Location: texas city, texas WebSite: Web Info: Contact: Date: Fri, Oct 04, 2002 at 19:21:07 (EDT)
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Comments: Thank you for all the info. |
Visitor: Gloria Watts Reference: looking for help and treatment Location: Columbia TN WebSite: Web Info: Contact: watt7@msn.com Date: Sat, Sep 21, 2002 at 07:48:24 (EDT)
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Comments: I am looking for help for my husband who is in a study at Vanderbilt Hospital for Malignant Melanoma. Surgery has been completed but study results are positive. I have been reading about the amazing power of enzymes and wonder if anyone else has tried this form of alternative treatment. |
Visitor: Linda Gates Reference: Mel-L Location: Virginia Beach VA WebSite: Web Info: Contact: gates.co@juno.com Date: Fri, Sep 13, 2002 at 21:10:13 (EDT)
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Comments: No comment at this time..... |
Visitor: Nancy Tenure Reference: search Location: Long Island, NY WebSite: Web Info: Contact: NATenure@aol.com Date: Tuesday, Sep 10, 2002 at 19:38:22 (EDT)
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Comments: I had a large melanoma Stage 1 removed last Sept. 2001. I saw the eye doctor and was cleared. Should I be doing something more? Is the 6 month visit to the doctor enough? Is there some kind of scanner that can check your body? I am fair and have many freckles and am afraid the doctor will miss things by just visually checking. |
Visitor: Steve Owens Reference: web serch Location: Milford Ohio WebSite: Web Info: Contact: sowens@nielsenco.com Date: Tuesday, Aug 20, 2002 at 16:03:49 (EDT)
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Comments: Just had surgery to remove mel from scalp. No node involvement and no follow up treatment recomended. Still scared. Your site should educate me so I can go on with life. Thanks. |
Visitor: Cathelean Reference: Internet Search Location: Midwest, USA WebSite: Web Info: Contact: antpheby@netexpress.net Date: Fri, Jul 19, 2002 at 03:30:36 (EDT)
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Comments: Here it is 2:20am an I cannot sleep or think; can only pray. My Mama awaits a 2:oopm appointment today with her surgeon to discuss the pathological findings on 2 groin lymph nodes. She has/had a Stage IV Melanoma on her thigh - the tumor and the site has been excised twice in the past 18 days. I do not like reading the info I am locating on the internet - seemingly,it is not too promising. I am scared for her and for me, her daughter. Any response is welcomed. |
Visitor: Marco Reference: other link Location: Texas WebSite: Web Info: Contact: MarcoPArevalo@hotmail.com Date: Tuesday, Jul 09, 2002 at 13:34:22 (EDT)
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Comments: Working for a long time in the medical field, I have learned that people freak out when they are told they have malignant melanoma or other type of cancer(with a good reason). An analogy would be like having a coral snake in your lap. You would want to remove it as soon as possible. I also know that scare patients make decisions that can cost them their life. Please visit texascancercenter.com if you have just been diagnosed with any type of cancer, It can save you overtreatment and give you better quality of life while fighting cancer .......good luck to those now in the trenches fighting cancer. |
Visitor: Joyce Jimenez Reference: I was referred by Bill & Gerri Stood Location: Torrance/Los Angeles County/California WebSite: Web Info: Contact: jjimenez@torrnet.com Date: Fri, Jul 05, 2002 at 16:53:51 (EDT)
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Comments: I was diagnosed will Melanoma III in Jul 1999 - had surgery in Aug 1999 to remove all my lymph-nodes under my left arm and started on the CancerVax trials in Sep 1999. Going for yearly scans in August and saying my prayers that all will be fine still. I do get scared at times when something different happens to me - but I guess that is a good thing since it makes me check it out with my doctor. Thank you all for the information you've posted to help each other out. |
Visitor: Larry Reference: Location: Montana WebSite: Web Info: Contact: dream_katcher99@hotmail.com Date: Sat, Jun 22, 2002 at 00:04:03 (EDT)
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Comments: Looking for info and testimonies on something that works. I have done a lot of things, but the tumors keep coming back!! Stoped the Alopathy therapies and have been doing Holistic, but . . . ? Great site! Sad to read about the people who have sucumbed to this disease! All-ways hopeful . . . God Bless to all! Larry |
Visitor: Stephen Phillips DDS Reference: Web surfing Location: San Diego area WebSite: Web Info: Contact: sphill9@aol.com Date: Fri, Jun 21, 2002 at 08:26:44 (EDT)
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Comments: My 50 year old brother in law was just discharged following a neck dissection--at least two large positive nodes. Original scalp lesion was only atypical melanocytes, not melanoma, but nodes are positive for melanoma eighteen months later. Radiation to follow, but I am looking at immunotherapy as a consideration. I, coincidentally, am awaiting a wider excision of a site on my lower back with a dx of atypical cells, the doctor left it up to me whether or not to do a wider excision, as his first surgery left little clear margin. With my brother-in-law's experience, I decided to go for it. I have been in touch with Dr. Weber's office at U.S.C., and hope to get my brother in law enrolled there is he qualifies. Thanks for the forum. |
Visitor: Sue Follman Reference: google Location: Michigan WebSite: Web Info: Contact: www.hymnsinger47@hotmail.com Date: Thurs, Jun 13, 2002 at 09:02:05 (EDT)
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Comments: I was diagnosed with ocular melanoma-Jul of 1999. I had a medium size tumor. I had my left eye removed on July 22, 1999. Thank God, the cancer has not spread!! Three years(almost) a survivor!! I have not been dilegent about my 6 months checkups-this cancer usually spreads to the liver or lungs. Reading this website has urged me to call my doctor for my checkup! God Bless! |
Visitor: William Doebler M.D. Reference: MSN Search Location: Holland, Michigan WebSite: Holland Community Hospital Web Info: Contact: doeble@hoho.org Date: Thurs, Jun 06, 2002 at 17:29:53 (EDT)
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Comments: No comment at this time..... |
Visitor: charles fuller Reference: google Location: eugene oregon WebSite: Web Info: Contact: chasfuller@msn.com Date: Tuesday, May 28, 2002 at 15:34:39 (EDT)
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Comments: I am just beginning my research. To date all my information has come from by primary physician and I need to know more about melanoma. |
Visitor: Edna Hopkins Reference: Web Location: Cheraw SC WebSite: Web Info: Contact: ehhopkins@earthlink.net Date: Fri, May 24, 2002 at 23:37:29 (EDT)
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Comments: I have a friend that had melanoma on his eyelid. They removed it surgically with two cuttings. They said that the last surgery shows no cells. He and his wife were told that they felt they had gotten it all. He was recommended to Duke; but he refuses to go. |
Visitor: Edna Hopkins Reference: Web Location: Cheraw SC WebSite: Web Info: Contact: ehhopkins@earthlink Date: Fri, May 24, 2002 at 23:35:56 (EDT)
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Comments: I have a friend that had melanoma on his eyelid. They removed it surgically with two cuttings. They said that the last surgery shows no cells. He and his wife were told that they felt they had gotten it all. He was recommended to Duke; but he refuses to go. |
Visitor: doleta Reference: surfed Location: Oklahoma WebSite: Fine-ly Affordable Wedding Photography Web Info: Wedding photographer Contact: doleta@mmcable.com Date: Sat, May 18, 2002 at 22:58:10 (EDT)
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Comments: My wonderful husband of 31yrs has melanoma. I truly appreciate your site and will visit here often as I keep researching. Thank you, and God Bless! Doleta |